One of the more interesting symptoms
of bulbar-onset ALS is excessive/uncontrolled laughter and crying. We used to
joke that the bouts of laughing and crying were kind of like the weather. You
just need to be a little patient and the storm will pass.
I remember one particular incident where something got Bill laughing and then he couldn't stop. He was standing at the kitchen sink and I watched helplessly as he just "slid" down the cabinets to land in a pool of laughter on the floor. Fortunately, at least on this occasion, he didn't hurt himself! I jumped up and got behind him, to lift him safely as he'd carefully taught all of his caregivers. Only...his legs were not in a cooperative mood. I'd get him about half way to standing and he'd start laughing again, melting any bit of strength in his legs. After 3 attempts, I realized that until the laughing passed, we didn't have a prayer of getting him vertical again. Sometimes it's just easier to "go with the flow"!
So...together, we managed to get him propped up in a corner, leaning against the
cupboards. I grabbed a glass of wine for each of us and pulled up a seat on the
floor right beside him. Interesting side note: you can get a very interesting perspective on life and
your housekeeping skills from this vantage point! The dogs must have thought
we'd lost it, but decided to join us as well. What a sight!
I remember one particular incident where something got Bill laughing and then he couldn't stop. He was standing at the kitchen sink and I watched helplessly as he just "slid" down the cabinets to land in a pool of laughter on the floor. Fortunately, at least on this occasion, he didn't hurt himself! I jumped up and got behind him, to lift him safely as he'd carefully taught all of his caregivers. Only...his legs were not in a cooperative mood. I'd get him about half way to standing and he'd start laughing again, melting any bit of strength in his legs. After 3 attempts, I realized that until the laughing passed, we didn't have a prayer of getting him vertical again. Sometimes it's just easier to "go with the flow"!
We enjoyed the wine
and talked about a lot of different things that night. The laughter ran its
course in about 30 minutes. And once he was back in control, we were able to get
him safely standing again. We were back to "business as usual". I've
often joked that my life is "The Truman Show" and this was definitely
one of the funnier episodes!
Lessons learned:
1) Life is about falling....Living is about getting back up!
Lessons learned:
1) Life is about falling....Living is about getting back up!
2) Laughter is good. Too much laughter...
3) Take the time to laugh and enjoy the moment...don't fight it - join it!
4) Hire a housekeeper!
3) Take the time to laugh and enjoy the moment...don't fight it - join it!
4) Hire a housekeeper!
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